Wednesday, January 5, 2011

Lollipops

When Oatie and I first went to Montreal to start ABR, we travelled alone by air. Travelling with a 2 year old wouldn't usually be daunting or a challenge as I worked for our national airline. But travelling with a child who couldn't stand, walk or fit on the change table on your own was a very special eyeopening experience and a lonely one. Like when you've hurt your leg and then noticed the path had an incline but you never noticed it before. Oatie is very attached to his dad and was crying on the plane when this nice Canadian soldier popped his hand through the gap in the seats and handed Oatie his very first lollipop. Oatie has loved flying eversince. This nice soldier helped us off the aircraft to all the way to the taxi rank.

We're slowly going through our Halloween candy, so today the kids choose a lollipop each, when Oatie goes "airplane yeah!"
Today we did 2:20 manual ABR

First day of school for Oatie

Today is Oat's first day back. I waited in the car as his dad took him in as I almost burst into tears; Oatie's excited about going back to school and I'm happy that he loves school but with such a long break the idea that the bullying could start up again could be a reality. Wow his dad drops him off quick he's already back at the car. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Tuesday, January 4, 2011

Swiper the Fox - PR representative for Foxes with potential CP wins again...

Yes, my beloved daughter has now convinced her older brother that Swiper is in fact a misunderstood Fox with potential CP and receives poor treatment from Dora. Today while Oatie and I were doing our bench session (Oatie hugging Swiper), Oatie's older brother was watching Dora too, saying that Swiper was trying to Swipe Isa's cupcakes and that he was a BAD fox, well that was it, Oatie's sister stated her whole case from A-Z, asking her brother where was Swiper's invite? If he was included then he wouldn't feel the need to Swipe to get attention from being ignored!


Anyway I use my iPhone for our Manual ABR, I have a app called "TIMELOGGER" I love it, I put all his exercises in it and it has a start and stop feature and you can add deductions, and well whenever you want, you can see you actual time you done, and email it as an excel sheet to your desktop.


Oatie's sister unplugged my phone, switched it to Camera and too photos of the TV, of Dora shutting a hedge door in Swiper's face and Boots smiling!


I know it's just Dora the Explorer, but what I like about Oatie's sisters theory is that she has been thinking outside the box, she has thought about someone else's feelings and also rather than just shutting Swiper up, by saying Swiper no Swiping, she want to resolve the problem or conflict, she would want to mediate, get in there and try and make a change and create understanding between Dora and Swiper.


OK and she did persuade me to post the photo she took...

Today we did just under 2:45 (no not 2:41) we could have creamed 3 hours, but I decided to help a friend in need which did take up a few hours of our day. Before we had Cerebral Palsy in our life like known which is coming up to1 year end of Jan, I would have given my time in a blink of an eye. Now, I feel torn between hitting my target of ABR hours and volunteering my time, when for me there aren't enough hours in the day. I still do volunteer with the Scouts Association each week, but unscheduled spontaneous helping out of others for me, come more from the heart now than they ever did before, not because I don't want to help but I don't tend to have "Luxury" time like I used to, everything is executed down to military precision...



So.... what I don't like even more now after having CP in our life, is people wasting my time, like if you went to a meeting and the objective was sidelined not for any other reason but it being ill chaired, for a natter (chatting about nothing), I don't mind a good chat about nothing but when that was what was planned. Or just sheer incompetence of others, which ends up wasting your time, like courier companies and bureaucrats, I hope that doesn't sound too harsh, maybe I will post the "The Flow" part of "post 2:41" to explain what I mean.


Yes, every now and then, unintentionally people put their foot in it or rub your face in it, but if it's done un-intentionally I don't mind and have no ill feeling towards that person, at least they are talking to me normally and unguarded, I'd rather that then they feel that they can't talk to me because of Oatie's CP. Yesterday a friend and I were at a public facility coo-ing over a few month old baby, it was a beautiful child and well, my friend said, we're (me and her) are looking afar at the baby, as we're past that stage, all of ours (mine and hers) are running around and independent, not at that awkward in-between crawling-walking stage. Well, 2 of mine are and one isn't, Oatie although 3.5 at the end of the month, is like an 8 month old in walking, he'll stand up take some steps, sometime he'll make his target, and other times he won't as he'll fall most of the time he'll frog-hop crawl to get around. In another way it was flattering that she see's past Oatie's CP and see him as just Oatie a kid. But inwardly, you feel the hurt, pain and loss of your brain injured child all over again, like a dagger through your heart, how you pictured your family, and the actual picture of your family. We have a lovely photo my mum took of the 5 of us when we got home from hospital with Oatie, all of us beaming, it's on a digital frame by our bench, and how we had no idea at the time that he had brain injury and what we were in store for. Our family photos still have beaming faces, just that Oatie's grin is the HUGEST!


Swiper shut out from the secret hedge door BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop
I was looking at that strangers baby, wishing (inwardly to myself) that it didn't have "hidden" CP, as you couldn't tell with Oatie when he was a baby, we bought a plastic hamburger for Oatie to kick on the ice when he could walk, Oatie's brother has saved all his skates for Oatie, but I cant' part with them as it feels like we've given up on the idea of improvement, and his brother won't let me part with them either as he's saved them for him.

Monday, January 3, 2011

Swiper earned the Sheriff Bandana

Today we did our session in 3 bits which was very unusual for us as we normally do the 2-3 hours in one go. Oatie let Swiper wear his Sheriff bandana today and snuggled with him on his bench. I don't know if Oatie previously overlooked this toy or maybe he wasn't strong enough as you have to have some core strength to push the spinning top down to make it work but today Oatie discovered it and loved it. It was one of his big brother's very first toys. Oatie played Wii Mario and build lego and watched his brother and sister skate. We didn't hit our 3 hours today, we got in 2:35 today. Oatie put his cuddly stuffies on his bed and only when it got to Swiper, he said Buzz Bench YES, (Buzz Bench is Oatie's ABR machine's name.) BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Blog Makeover - and Does "Swiper" the fox have CP?

Today I gave Oatie's blog a little, blogger makeover, rather than the snow background, there is now an ice background, I was going to take a photo of the ice of one of Oatie's brother or sisters ice-tracings and use that as the background.  My ice tracings are not textbook... (I'm still learning to skate) my one foot spin looks like a roller-coaster lol!  I like skating too, and I really enjoy our adult lessons, it's one hour a week, where Oatie's dad and I, (with our helmets and padding) learn something new and have some fun too.

Oatie played with his plush Swiper, and played role play with him and invented a scenario where Swiper was the Hero (from Dora the Explorer), yes it did involve his sister's Barbie car and the "people" that needed rescuing were also cars.  As, his Sister, the other day (after Oatie insisted on having Dora on his screen and the main TV for his WHOLE 3 hour bench session) came up with a huge story, defense and evidence on how Swiper could have cerebral palsy for a fox, and how, therefore he couldn't communicate his words, thoughts or feelings as well as Dora or boots, as what he says is very similar and limited to a few phrases like her brother Oatie, and how he would like to be a nice good fox, but he can't express himself verbally very well, so he would like to just play with Dora and boots and go on their adventures but as he "doesn't fit in" he gets excluded and never gets a chance to join in as before he does, it's always "Swiper no Swiping".  And on the odd occasion Swiper is allowed to join in the adventure like getting baby fox back to his mum, Swiper was the hero.  Oatie's sister also backed it up with further evidence on how Dora made her baby twin brother and sister LIFT her and boots up in the air in the episode "Super Babies", and how this was another example of Dora was further taking advantage of other people.  Well, anyway after the case was won by Oatie's sister, Oatie went into the playroom and found a mini soft squishy ball, and started to roll Swiper's chest and Oatie said "Swiper Bench YES!"...  since that day, Oatie has taken Swiper shopping in his cart, and taken him to bed and to me, it looks like he has kind of has taken Swiper under his wing.  Watch out world, Oatie's BIG sister is 5 and is one of Oatie's stongest Advocates, so if she has this much passion and spirit at 5...just watch and wait...

Happy New Year!  Love Oatie's Mum
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Friday, December 31, 2010

Oatie's making his own disco




Oatie's Making his own NYE party, it was the first time he ever played the drum, he went and found it and found two beaters and just started to tap out a rhythm! 

New Years Eve

Well mum doesn't believe in New Years Resolutions well, for this main reason why wait till a particular time of year to make a positive change, any day in the year will do just fine.

Here we're playing a honeybee game and I'm counting the bees in French.

Ok I'm wearing my Sheriff outfit, someone got to see that the rules are followed! Sheriff Oatie !

I wonder if any of the police force have cerebral palsy?

Well, Happy New Year!

Love

Oatie xxx BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Wednesday, December 29, 2010

Delayed bench

Oatie asked so nicely that we couldn't resist building one truck of his Lego set it was a team effort. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop
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