Sunday, November 28, 2010

No ABR, Croup and Competition....

Well, I had an action packed weekend, I came home from school with a Croupy throat... I was just glad that my brother and sister were in a figure skating competition at the weekend... which meant lovely cool air for me but not too cold.  My brother and sister were awesome.  I was so proud of my sister, she's 5 and it was the first time she competed... even though she didn't get a medal, she went and shook all the other girls in her flight.  My brother did great and it was his best skate EVER, I was right up by the glass and I LOVED every minute of his skate.  They also did a team even with a friend and that was super too.  We did stay to watch the "special olympics" section, they were amazing they out skated my mum!  I know that there are different categories for level of handicap, but these girls were great!

Another coach who used to teach my brother and sister said she worked with special needs and she said she would coach me too... 

Thursday, November 25, 2010

Have you read about including Samuel

Well apart from wishing that Samuel did ABR.... have a look at this website,

Thursday's warm

Today it was a nice change from -30oC, we got the results from my speech assesment, which was fairly accurate of where I am at... mum after about 30 minutes, chuckled to herself that she already knows where I'm at and what I can and can't do being my mother and why I had the speech assesment... one of our close friends said it was surprising that not all parents are that "in to" their kids and it could be news to them.  Anyway it was nice to know that we're on the same page so to speak....  I also had my school photo, my big sister is ill with a virus this week so she missed her photo, the poor thing.

We did 2 hours of ABR as it's getting quite close to my big brother and sister's skating competition this weekend.  They have a special olympics category so I'm hoping that we get to see that as I would really like to.

Well I'm tucked up in bed now with my ABR machine on... last night I went to see my big brother's school's senior high theatre production, I may be 3 and have CP, but I sat through a two hour live show and loved every minute of it.

Sweet dreams and happy thanksgiving to all our Friends in the USA xxx

Tuesday, November 23, 2010

New aide

Today was my first day with my new aide. It went well and he's nice too. The bullying after my mothers loud "outburst" over discriminatory behaviour seems to have dulled it all down, let's hope it stays that way.

I had 2 hours of ABR manual and 10 hours of ABR machine today.

Today I did art at school. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Thursday, November 18, 2010

I did some art at school

Today I did some art at school we did 2:45 of manual ABR and 12 hours of machine. Today we did 10 hours of ABR and 2 hours of manual. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Tuesday, November 16, 2010

Snow day

This morning mum was woken with a automated call from my brothers school saying it was a snow day. So we all stayed at home. Mum did drive upto town to get some bits for the upcoming skating competition for my brother and sister. We haven't done ABR yet today as mum
Is currently waiting at the car garage to put on her cars winter tyres after the treacherous drive to town. So hopefully I'll get my bench in later. I had 12 hours of machine ABR last night. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Monday, November 15, 2010

Going to snow

Today we did 12 hours overnight of ABR Machine and mum did 3:05 of ABR on me. I stayed at home today as I was still bunged up. Dad made me a paper aeroplane that I love. Look who's standing BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Saturday, November 13, 2010

ABR, Scouts and Machine!

Today, mummy had a Scout Leader Training, so I was at home with Daddy, and my Big Brother and Sister.  Mum had gone before I woke up, so I got in..... 12 Hours of Machine ABR, dad restarts the machine when they go to bed, so I get a couple more hours in of my Buzz Bench (Machine ABR).  Daddy was going to do my Ball Rolling in the morning when he noticed that our Hot Tub was behaving oddly... one of the pumps broke, so a nice repair man came out and had it all fixed in a few hours.  My Brother and Sister had their dancing today and then after Lunch, Daddy did my ABR.

Mummy Passed her Scout Training, Daddy did his 2 years ago.... so she was pleased, and one day I'd like to be a Beaver like my Brother and Sister.  We have become a "Scouting Family" and the nice thing about Scouts is that they welcome people from all walks of life and all abilities and is open to everyone which includes Boys and Girls...ME!  Yes ME! and it will be so nice to be "accepted" too.

We had a lovely day, I'm wired up to my Buzz Bench (ABR Machine) and I hope to make 12 hours tonight too!

Sorry about all the photos of me on my Bench, but if you think that now I spend over half my day doing ABR, 12 hours on the machine at night and 2-3 hours during the day.... photo opps are quite limiting! LOL!

Friday, November 12, 2010

Musical Friday

Today mum was a bit better we did 13 hours of machine and 3 hours (and 2 minutes) of ABR. We went through all our exercises too. I'm playing with some percussion instruments.

Thursday, November 11, 2010

No ABR today, Mama had a second wave of being ill...

I was very sad today as Mama had a relapse and was ill and I didn't have school, and my brother was now ill too...  So we couldn't go to the remembrance service today.  We did all wear our poppies and observe the two minutes silence.

Today we watched the story of Helen Keller, mama read the book when she was a kid and found the story very moving and inspirational, and hoped that it might enlighten my brother and sister that I too am trapped, not as badly as Helen Keller was at all.... but in my own way, like not being able to get my words out and the frustrations.... and also teach them that amazing things can happen or be achieved....  And hopefully to be grateful for what they do have, all their senses and motor function wonderful.... (they both figure-skate).  Speaking of which, they have the "Special Olympics Category" at the fun skate coming up  I think they have the level 3's so it might be quite advanced...., it's only an hour or so after my sister skates in her first competition... so mum would like to look at the category that is competing... and I know I can't walk now and I may never do so un-aided... but I soooo want to ice skate, and I will, in my own way, even if it ends up being unconventional...

Well, I'm on my buzz bench now... zzzzzzz-ing away, mum and dad have worked out that we could get 12 hours or so in of the machine, if the stop it and restart it when they go to bed..... that would be an extra 1-2 hours of machine a night! whoo hoo!

Hope mama is better for tomorrow, as my ball is calling for it to be rolling.... ohhh and I learnt to hum today and I can parrot repeat all my big brothers spelling words in total clarity!  Still no word back from our speech assessment...

Sweet Dreams.... Love Oatie

Wednesday, November 10, 2010

Home Fire Drill & ABR

Today I went to school, things are really beginning to settle down... my usual aide wasn't there she was malade... I did really miss her, so my mum stayed for 40 minutes till a person applying for my permanent aide, came to meet me... mum didn't want to cramp my style..  During mum's 40 minutes, one of the alpha's as mum calls them came and hit me (several times) and then they screamed that I hit them... mum let the first incidents go... and but the third time mum wouldn't stand for it and told the  "alpha" directly and very loudly, whether what he was saying was true or not... and the "alpha" did confess that I didn't hit him.... he didn't try to hurt me after that....  I wish I could speak like my friends or my family, I feel so suffocated sometimes in this body, I mean it's cute and all... supercute and I'm a spitting image of my big brother but I think I have a cuter dimple... we even have the same glasses prescription...!  Handy !

I counted to twenty in French to show my new aide that although I'm trapped, I'm still a bright clever person.

Well today, we did 2.5 hours of ABR and now I'm zzzz-ing on my super buzz lightyear bench (Machine ABR) in my Buzz Lightyear Pyjamas....

This evening we had a discussion on what to do in the event of a fire each year we do a very detailed fire escape plan... (My parents are both Scout leaders... so BE PREPARED!!!) mum even has handy velcro evacuation kits, with foil blankets, LED ligths, whistles etc...My Elder brother is super smart, maybe now as smart as me (rib rib) but he and I really bonded last year... (till then as there is a 4 year age gap and I'm impaired....) when we did our first fire drill... I was in a baby cot, and we were discussing strategies how to get out of the house and what order etc... and my brother couldn't lift me out of the side of the cot (In the even mum and dad can't get to my room) so mum and dad said if my brother couldn't get me out even with my sisters help, then they'd have to leave me in the cot... and get out the house and call for help... at which point my big brother broke down in tears and screamed no... "I WILL NOT GO WITHOUT OATIE!" and made mum and dad cry... oh and my sister...  at which point, I was pretending to sleep in my cot for the drill... my big brother who was only 6.5 at the time, reached over and grabbed me from under the arm pits and pulled me out....

Well, since starting ABR my body has improved as you also know, so I can now sleep in a NORMAL bed !!!! it was my big brothers till he got is bunk bed.  But now I have the ABR machine.... so dad thought that it would be an idea to discuss fire strategies with the machine... So mum and dad asked my big brother (7.5) how it would be best to free me from my machine...My brother worked out that the best thing to do if the house was an inferno was just pull the grey hoses from the bladder and then I Oatie could go outside with all the wraps, bladder etc... still strapped around me...

What made me choke, I guess was when my big bro said.. oh but what about the machine if there was a fire, I LOVE the machine, it's really helping Oatie, to which mum and dad said, that our "family" at ABR would rather we got out of a house fire and we could replace the machine but we couldn't replace us kids/our family.

So on Sunday, we're doing a full fire drill where my brother and sister get to press the FIRE button , the only difference is that we'll be wearing our snowpants and coats in bed for the drilll, and I hope mum will let us put our boots on just for the drill....

Even things like keeping our rooms tidy (laughing out loud ), well mum says every night the path to the door from our bed should be clear...

Little things like putting window stickers or hanging an article out the window and close it again, to identify which rooms have people help the fire fighters locate you in an emergency rather than trawling through an unfamiliar house to find you.

Mum says that you can never be too prepared and like you do at school or work, you obviously don't want a disaster to ever occur, but should one happen, we can take it in our stride or hop in my case and you can remain calm, focused and level headed....  If you practice you can take time to think out the best way and discuss why, where as in an actual disaster/situation every second is critical... especially for one that can't walk.

For all families, please take time to practice your HOME fire drill...

Tuesday, November 9, 2010

Daddys birthday

Today is Daddys birthday so I haven't gone to school today, I'm spending my day with daddy. We're going out for lunch, here's me in my carseat. I hope I still get my ABR bench in.  I didn't get my bench in, sniff sniff, but.... I did sing happy birthday for the very first time!!!

Settling down

Ok yes these are my favourite pyjamas ! And yes I have several pairs of these Elmo pyjamas my nana sent them from England. I also love my toy story ones from my other Nana too.

Preschool seems to be settling down like all the bullying and anger from the parents after my mum had very loud strong words openly about prejudice seemed after to settle it all down. Hooray!

Mum did 3 hours on my manual ABR today and I'm snuggled with my ABR machine right now. Here I am helping out !

I'm singing while cleaning ! BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Sunday, November 7, 2010

My new puzzle

My brother and sister helped with my Diwali present from my Auntie

Last night I had my full cycle on my ABR machine ! 10 hours whoo hoo! BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Saturday, November 6, 2010

Over 100 posts.... Mama's Ill

Today we have done our 103rd post... Mama is ill, so daddy did an hour of manual ABR for me... After Dinner it cutely went to mama, "Mama Bench?"..... Mama explained that she was ill today and wasn't able to... so I then said "Mama Please Bench Please.....?" to Mama re-explained how she'd love to but wasn't well enough today... so I then asked "Daddy Bench...?" so Daddy did one hour and now I'm on my Buzz Lightyear Bench (ABR Machine), Mum and Dad already think I've improved with it... the other day when my brother and sister were skating, I lightly held mama's finger rather than crushing it in the past....

Friday, November 5, 2010

Machine Friday

I can now eat pasta with Ease !
My Sister on the left
Today my middle one had school skating and Oatie had his speech assessment at school. So Oatie had in two sessions to machine ABR a total of  4 hours. I did 30 manual ABR on him today. We went for a family swim.
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Thursday, November 4, 2010

Oatie Malade/ill

Oatie had a minor sniffle, he was ok to go to School, but he was a bit teary so we kept him home. Today was the first day we got through all the exercises which felt good we did nearly 3 hours of ABR. While our older two were skating today, Oatie's dad put him down for a nap and Oatie had 1:40 of ABR machine too. A great day all round.

Wednesday, November 3, 2010

First time for "Oatie Buzz Lightyear" ABR Machine...

Today we did 2:45 of ABR (Manual) that is all we have done to date either Ball Rolling or 3Q. Today we put on the "Buzz Lightyear Machine" = ABR machine. We did just over 1 hour aswell, we were advised to step it up gradually... Poor Oatie came down with a cold too... Oatie was ok having the machine on in bed as long as I read him a story, that way he wasn't scared of having it on, he did fall asleep with it on, while he was awake he said he liked it.

Tomorrow we might try a little more time with the ABR machine...

Every year at fall, we do a Swiper the fox hunt, this is where Swiper BUYS some gloves and a Halloween-esq treat and some useful things for the kids, there are clues, gifts and candy scattered through the house. Here is Oatie, this is how he goes down the stairs, like a missile and his new Webkinz monster ...
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Well I had better stop blogging and get rolling lol!

Well, I had better stop blogging and start rolling, in the near future I'm going to add some more pages: my favourite ABR Tools page, Apple Apps which time all my ABR to Oatie's custom wardrobe which I have re-sewn for Oatie, so he can enjoy the inside and outside without wearing holes in his pants/trousers (depending which side of the Atlantic you are) and made him some outside hand-mitts so he can go on gravel, tarmac, grass etc...

If you travel for ABR to Montreal, I added a hotel/restaurant guide, approved by Oatie yesterday...

I have just added a Comparisson page... but this is just so awesome so have a look!

Here is Oatie from March to August... March we started ABR and look at just 6 months later!

Before ABR March 2010

After 6 months of ABR

Tuesday, November 2, 2010

Jazzy Tuesday

Today we've done 1:40 so far of ball rolling and Oatie's having a nap at home with his dad, while I take our other two to Jazz, we're going to finish our ABR this evening while my older two are at Beavers. Tonight, well Oatie and I ended up enjoying playing so we did do another 20 minutes or so. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

WOW what a great day 1

Well day one I call it the dress rehearsal. The team at ABR HQ are so fantastic we've already got our exercises with photos, notes memory joggers already !

Oatie finally got his bench and was in pure Bliss. Thank you ABR team for such a excellent way of helping our children pain free and look how far they have come. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop
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