Tuesday, May 28, 2013

stupid really...

I don't know why i expected any different... we went for Oatie's annual visit to the childrens' hospital and well even though we are lucky as he's an openminded consultant and keeps the door open for adaptive equipment and a point of call....

He went on about how Oatie will end up wheelchair bound without surgery and all this other usual medical stuff.... he said that he'd end up there he's seen it time and time again... (afterwards now I've calmed a little... It thought his only empirical data is surgery cases) so that consoled me a little that with surgery they've ended up in a wheelchair...

What' has caused Oatie to regress a bit and get "worse" is the flipping walker, but if you look back at my blog to the dilemma of the walker, Oatie was becoming exceptionally agoraphobic being in his chair.

The consultant said that Oatie will reach a stage where the wheelchair will take over over him choosing to walk and negative spiral that way.

We've minimised the walkers us to school only and at social gatherings... when he walks on his own he's alright...

AND... I haven't rolled him in one year now with his ABR... he gets is bench each night except when he's ill.... and I need to roll him.

I'm hoping that by rolling him he will get back to where he was and carry on his improvement.

I don't know why i came out flat from that, what was I thinking!!!! what was I expecting...!!! Silly ME! How could it have been different or better... (we are lucky he isn't an arrogant A@@e!

I suppose it was the guilt trip of not doing the surgery or the other stuff....

What I do know... maybe it was the kick up the butt that I needed to get rolling with Oatie again! maybe it's just what I need!

1 comment:

  1. There is no need to beat yourself up; our lives are overwhelming simply by themselves. There really is a limit to that which we can personally accomplish, trying our best for our kids is really what counts. I would follow your mother's heart in deciding which path to take; when you follow you heart all other things for Oatie will work out for the best. Our warmest regards to all....

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