Here's our house

We did over 2:35 hours of ABR today it was an awesome day on the bench, here is the homemade gingerbread house, is by the front door, mummy is holding my hand. Oatie is in the green

Gingerbread house Yummy!

This morning mum baked the bits of a gingerbread house, 2 hours later the house still smells yummy. We're about to start our bench in a minute, a quick advent calendar chocolate and we're off...

Yes, Oatie wanted a dinosaur outside the house when we've built it, with trees and our family in gingerbread people

I have a post in my drafts that I'm not brave enough to publish... yet!

Well the onslaught of the ski shop spilled in to, today.... I didn't realise how much it affected me this time or Oatie, which has made me wonder whether to shield him from such events or not, or then is it pretending that he isn't really physically less able?

It affected me so much, that today we had the worst manual bench session since March, Poor Oatie was full of phlegm and he didn't want to be there, he also I realised today enjoyed his new found freedom of Chronic pneumonial Bronchitis, he got to play all day and he as was I enjoying having some downtime.... and not be attached to a bench for that time.  On the upside it's the Christmas holidays so without the school run dashes etc, he and I both get some time to do other things rather than being as I call it a pingpong.

The bit you are "missing" was this whole bit about being on your own, but with emotion, how the only people who really have any time for you, are for example your ABR friends, people who themselves have the least amount to time to spare, have the most time to give.  Just a one-liner is all it takes and it feels like the biggest bested hug and I'm a hugger!  It also adds the contrast that these people have the least amount of time and the people with far more time are not there for you.  Your support network if it's like ours fits on one hand, the empty promises give the enticement of support, but is like stepping on a cobweb, you think it's strong as a web, but it's as strong as one strand and it's not really there.  You have the "brushers" under carpet who think, Oatie will be CURED, and he's just experiencing a life blip, like club foot and it will all just go away with time and he'll be just as able as you or I and on the really tough days, I just have to put on the brave face as, you can't be honest and say how it is as then you get accused of being self-centered and Yes I know there are millions of people out in the world suffering, dying of terminal disease, victims of war and famine.... and so many more people worse off than Oatie or I.  But at the end of the day, I'm just a ordinary person, I don't profess to be anything else than that, I have feelings like Oatie and I hurt too.  My poor Cat has had so many tears on her coat through out her life, she's 11, she's the one I always turn too, even though it severely messes up her fur, she's always willing to sacrifice it.  Oh dear, it's turning emotional again...

Well I had this whole bit about parental sacrifice how you'd chop or donate a bit of you, to spare your child, but that (I could be the only person in the whole world who feels this) feel that that is the easy option, sacrificing time on an ongoing basis for me is harder.....

OK, I have just chopped off the latter part of this post and saved that in my drafts too, as I'm not sure if I'm brave enough to publish that part either it ended up being a less emotional version of post "2:41", what if my few followers disappear too as a result?  It was the my version/feelings of a snapshot "word flow chart" of life with a Cerebral Palsy special person.... do I post it or not.... the hesitation is because it's the truth, well, as I see it.... and it's not what "people" want to hear....  OK going to find my cat....

Tears in the ski shop

Today we took the kids to the ski shop. Our goal is to take Oatie skiing when he's five as he'll need adaptive gear which is very expensive. It dawned on me that we'd need to have our older two be able to stop and turn safely before Oaties dad or I ski with Oatie. I'm glad we're good skiers so when the time comes that bit is taped. Anyway the poor love cried so much in the ski shop. Oaties helmet. Oaties Skis oatie's boots. As usual you got the looks of Oatie being a spoilt brat where he was actually just mourning with tears for his handicap which I know he HATES, it's like I knew what he'd ask Santa for or his birthday wish, it wouldn't be a toy game or gadget, it would to be as able as his brother and sister.

We did it

We're back on bench. Today we did 1:10 which was good for our first manual session. I was out of bench shape lol! So tomorrow I'm hoping to do a full session.

Oatie's bouncing back!

Oatie is bouncing back! ABR support is really great, our Area resident trainer is on annual leave so another branch trainer emailed with some exercises to do get him through his ill period, but he was so so so ill I just couldn't do anything apart from put his machine on, but today he looked like he could be up for his manual ABR. The only thing is, is that mummy got used to having more time on her hands (from not rollling him for hours each day) to play with the kids and have a more relaxing time at home life, I even painted my nails and not feeling like a ping pong ball. But... Going to push the selfishness away and get back on track, Oatie needs me and my other two are so lovely and unjealous they don't mind me rolling him for hours and actually encourage our bench hours, they can see how much ABR helps him.

Phew! That was close...

I have Bronchitis, and the doctor couldn't believe it was my very first antibiotic since I was born!  The Dr said that if it had been left and with the CP, it was almost certain it would have developed into pneumonia, mum and dad have pneumonia radar fortunately!

I'm on my way home, it's a 30min wait at the pharmacy for my prescription so dad and I are buying some things to go in our Christmas Crackers that we make, at least I'll get to go to the Cinema on Saturday after all, I've been looking forward to it all week. and... I'll get my manual ABR back when i can breathe better, I've really missed it with my brothers school skating and my bout of illness.

Love Oatie

I'm at urgent care

Dads taken me to urgent care, I remind mum and dad of Luke he had a full appetite and happy when he had pneumonia, so let's hope it's nothing!! So dads taken me to get checked out, I was so excited for the expedition, I packed some toy cars, taken my Dora DVD to occupy the wait, meanwhile my brother was crying in bed thinking I'm going to die and my sister declared she couldn't live without me, for a little brother who enjoys terrorising my siblings on an ongoing basis, they sure do love me, by now mum will have the sewing machine out to take her mind off worrying.