Tuesday, September 28, 2010

We did it!

We got our 3 hours in on a tuesday. We had such a great day and Oatie can repeat the French alphabet. He can also slide out of his seat once we've unbuckled him. He can also play on the ball sorter with speed I was amazed. He is so bright I hope he/we find a way of him utilising, expressing it or being able to enjoy his intelligence in later life. People including kids think he's thick as he can't talk fluently I see the disdain on his face like 'what us wrong with you for speaking down to me or how could you be that rude?'. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Early ABR



Today we did early ABR I set my alarm for 5:30, but didn't get up till 6 so we got 1 hour of ABR in before school which was fantastic. Tomorrow I'm going to try to wake at 5:30 it's so nice knowing you've clicked an hour or so before the school run. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Monday, September 27, 2010

Mum has minor bench resist!

My mum has been finding it hard to focus on my bench as much, it started with my falling ill. Mum would like to maintain our bench hours but also readjust our social balance. As there is little time for us to play together and mum is missing that. So mum has the idea of waking early and doing some ABR before school, and then sine when I get back, so that will leave time for mum and I to do stuff together. Today we did really well we did 3.5 hours! BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Friday, September 24, 2010

Swimming today - hooray!

Today I went to school, we then did 3 hours of Bench, I watched my brother and sister figure skate and then..... my mom and dad took us swimming,  I Loved it!  I think I can swim one day without a float.... one day I will.

Thursday, September 23, 2010

Thursday's great

Today we did just under 3 hours of Bench (ABR), I really don't like having Cerebral Palsy at all, who would, but I wish it would go away so I could go down the slide like everyone else or hearing why is Oatie in a stroller still! I love school though, like really love it! BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Wednesday, September 22, 2010

Super Chef

Today we've been having a battle to get a one line letter from Oatie's paediatrician,  to say he has Cerebral Palsy for funding his preschool aid, it has been like getting blood out of a stone. We did just under 3 hours of ABR. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Tuesday, September 21, 2010

Monday, September 20, 2010

ABR Cerebral Palsy ohhh mannnn!

Oatie, wished that Swiper the fox would swipe his handicap. My mum is finding it really hard to get back in to our ABR routine this week. I have been good on the bench though. Here I am at the Weekend spinning my tape measure in IKEA. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Friday, September 17, 2010

One of those days...

Today was one of those days on 4 hours on the bench we actually managed 2:40. Why?... Well sometimes it could be Oatie, sometimes it could be me. If Oatie's siblings are at home... Today it was all three. It wasn't a bad session just had lots of interruptions. Oatie, he cried for almost half hour and didn't tell me why... After 20 questions I got to the bottom of it, he heard the word cookie and thought he was missing out, he was hungry but didn't say anything, the little sweetheart.

From experience when it's tough going I pick a point (an amount of time) and focus on reaching that. I find it's better to write a session 'off' than to make it arduous and no one enjoy it. You can always make up the time if you'd like on a day when it's a breeze. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Oatie at school

Here is Oatie at school this morning, he wouldn't have been 'able' to go if it wasn't for ABR. There was no way he could ever sit on a chair like this before ABR. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Thursday, September 16, 2010

Back on track

Today, I was so happy, I went to pre-school and then after a lovely lunch, we did some ABR, and I was so excited, I was tugging at the blanket which covered the bench.  (It stops my bench companion featured here in this this photo, from puncturing the ball or putting FUR everywhere.  This is my brothers cat, which knows that he is coming home by about a minute before he actually does (she starts pacing).  Well while he's at school she often snuggles with me on the bench or watches TV with me.  We just finished our session and I gave her a kiss.  Today we did 2:30.  Which wasn't bad after a break.

Wednesday, September 15, 2010

Oh and I can ALMOST do a SIT UP!

Today I impressed my papa!  I could almost do a 'sit up' all by myself!  I couldn't do that before ABR.  I hope I get bench (ABR) tomorrow,....

Mama is ill still... I hope for tomorrow

Today mum is still not well enough to roll me for 3 hours, or if she did she'd splutter all over me, and I don't think either one of us would really enjoy that so to speak.  However... Tomorrow is a new day, and Thursday is my mum's most favourite day of the week.... so I'm optimistic that I will get my session in tomorrow.  Today I got to go back to school it was excellent!  In the afternoon we went to the skate shop, my sisters feet have grown so the skates got punched out...  I had an emotional moment, I thought I was getting skates... and my lip quivered when I realised it wasn't time yet.  My brother and sister's skating teachers are waiting in the wings for me, when I'm ready, I can't wait.  Most CP skating programmes don't run till you are 5.  I'd like to aim for 4! Why be the norm.  I don't like the fact that just because my speech is not in total clarity that people think I'm mentally handicapped to.  (There is nothing wrong with being mentally handicapped, what I'm saying is) and I am sure that people who are don't like people speaking SLOWLY to them either!  People and I am generalising here, put their own limitations, prejudices and misconceptions and close mindedness on other's and well, how do they know that I don't have a higher IQ then them?  Maybe they feel threatened by people such as para-Olympians, those who can achieve and accomplish to elite athlete level, and be better than able bodied people purely because they don't have the same drive, willpower or I CAN DO IT! attitude?  I just wish that people would talk to me normally... I understand everything that is said to me, I may not OBEY like most 3 year olds, but by my choosing to ignore what someone is saying to me, is me being 3!  not being unintelligent!

Tuesday, September 14, 2010

Mama est Malade! -CP ABR Breaks on...

Oh no! Now my mum is ill too, and we have't done any ABR today, I was very sad and hopped over to the bench... I 'm hoping my mum will be back in action tomorrow.  I miss my ABR, and I've missed School.  Yours in Cerebral Palsy.... Oatie

Monday, September 13, 2010

Malade

Today I didn't go to school as I'm still getting over my cold. We did some of our exercises but doubled the time on the face down ones so mum didn't have to disturb me much. We did just under 3 hours.

Saturday, September 11, 2010

Sneezy Saturday

Today Oatie developed a light cold, so we decided not to do bench with him today. I thought it wouldn't be much fun trying to roll him while he was sneezing or comfy so hopefully we'll be back to our usual routine by Monday. The ABR team are great, if your child is ill, if you let them know, they will adjust your exercises for them to make them more comfortable, it's so nice having that support. I think the difference that I feel with ABR to other things is that you know that they truly genuinely care about your child, you're not just a cheque book, they actually love and value each and every family, which I still find surprising, but it has been consistently so since day one.



Oatie has got so into pre-school, that yesterday he could hardly stand up, he would try when he came out his class but staggered like he was "drunk" (metaphorically speaking). It is lovely that he loves School so much.



Just today Oatie's dad was admiring the improvement in Oatie's hand dexterity. I was slightly baffled by Oatie Rocking back and forth, thinking "Oh No!" has something happened to him. Until Oatie's dad pointed out that he's doing that because he now CAN! I was like "Oh yeah" he couldn't do that before, it was like he was doing AB exercises, he was sitting on a step in lowered den area, and leaning as far back as his abs would take and then releasing and coming upright again. How amazing is that!



I would like to one day, do a psychological survey on tragedy; there is probably already one done but, I would love to study the human psyche on the phenomenon after a tragedy. For example; when someone dies, people are all over the bereft family like the plague, and then after a month or so (probably when the family needs people the most) the support network diminish, they the 'people' get back to their own life... or after Haiti another example, I was glad when a group of musical artists got together to write the song about the disaster, saying once it falls out of the news, people forget - how true is that! I am beginning to feel it's the same when you find out your child is 'disabled'. For example, at first, we'll be there... then after a month or so, no one is there except a handful of people, who don't have to do a physical task, but are there in the wings, letting you bend their ear, or have a rant or point out the improvements they've seen in Oatie (which inspire me to keep on rolling* bottom of this post). Then you see some of the other people who were kind of there, either then looking at your life in 'horror', or that you're making a mountain out of a molehill, or pity or worse still... AVOIDANCE. I don't know about the other mum's out there, I think I might try and get us mum bloggers out there together. I do not want PITY, no way. But I know I have no right to ask, but if I did, I would like some 'understanding'. Every family has their own bags of 'stuff' to deal with, some are more visible than others, every family have their ups and downs and trials and tribulations for sure. For example Oatie's disability is visible. One of our best friends nieces born just 2 hours earlier than Oatie has more severe life challenges but are not as visible, but have had a far greater emotional roller coaster than we've had.



I'm beginning to feel like a multi level compartment rather than a plate spinner, trying to encompass everyone's needs (Including my own - which I am now achieving) and it doesn't always work, nor does it to perfection which would be my natural aim. But I think it's good enough most of the time but I refuse us to let the disability dominate our lives, but at the same time to embrace it, and I try and keep our other two kids life as normal as possible, we are not ashamed of having a child with Cerebral Palsy at all, instead we look at each of our children (Oatie included) in wonder, thinking how much cooler, sassy, switched on at their respective ages than say I or my husband were when we were that age. A compartment rather than a plate spinner , I suppose trying to give everyone including Oatie "time out" from the disability. But then making sure that we all do deal with the disability. Cherish the moments where we've had improvements in anyone of us and band together/stand shoulder to shoulder in each member of our family/team times of need.





(The inspiration to keep on rolling...)*Don't get me wrong that I don't not believe in ...ABR, I do wholeheartedly. It's the same amount of hours that I'm doing as a part-time job, a stay at home mum of three, cook, cleaner and chauffeur etc etc... (more housework then if you go to work) I know that from working part-time, full-time and staying at home before, during and after the kids were born, but it's not like doing a job, a job, you usually get to leave the house, interact with others either face to face or via other methods of communication and you get usually get a salary unless you're a volunteer. It's more like a 'discipline' when you roll, most people are probably alone, my husband works from home so I'm not... But it can be lonely but rewarding with the results, I used to run half marathons and every bench session is the same mindset for me, visualize the end, today's goal and keep going.



Okay, I'm breaking the mold, most people put a gloss over things, but I thought I'd just tell you how it is. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Friday's great!

Today I went to preschool, mum and I did 2:30 of ABR I didn't fall asleep as we did the exercises in a different order. In the evening I watched my brother and sister figure skate. I love my glasses. It was a shame I didn't have them on when my sister gave us matching hairstyles! BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Thursday, September 9, 2010

Tired thursday

Today JJ was tired from school and fell asleep on the bench so we might need a preschool ABR routine do all the shorter exercises first and the 1 hour one last for when falls asleep. We only managed 2:40 today because tiredness and he cried because he hates being handicapped. He knows his friends at school aren't but he is. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

New glasses and mummy's still beautiful

Today I was so excited about school. I absolutely loved it. On the way out I was chatting non-stop about my day. Mum and dad surprised me by taking me to the opticians. I got my new glasses and found it highly amusing when my brother came back from school and didn't notice my glasses. Mum asked now I could see properly if I still thought she was beautiful and I said YES. We did 3 hours of ABR bench today and I flakes out (so much fun at school) we watched all our programs in French which I loved. In the evening we painted our plaster Star Wars figures well the base-coat. I cheekily asked mum for pudding but with beautiful manners and my fabulous smile and mum melted like chocolate. What a great day. . BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Tuesday, September 7, 2010

Oatie LOVED Pre Maternelle

Oatie just came back from his very first morning at preschool, we hung around for about half an hour - well away from his classroom this morning so we were there if they needed us but well away so he didn't know that we were there. Just picked him up and he LOVED school absolutely LOVED it. So happy....he was just so happy that he got to do something 'normal' and at the same age as everyone else.  Today we did 3 hours of ABR.

Oatie's at Pre-School - Thank you ABR

Oh My!  He's made it!  Oatie's at Preschool!  Thank you so much ABR!  I know sincerely that without ABR there is NO WAY that Oatie would have made it into mainstream preschool!  No Way at all.  In March, he wasn't as stable as now, and even though he's mentally competent, but physically he would be a big risk of a bad fall or knock.  Now if he looses his balance, he does this controlled fall (Like a figure skater would.).  He's there, we've left the building and I'm blogging not from my iPhone but from my home desktop!  Usually it would be easier for him at preschool as his big sister would be in Kindergarten in the room opposite.  However today she is still in the phasing in phase of kindergarten.

Monday, September 6, 2010

Pre-maternelle demain

Hooray tomorrow I start pre-school. In the afternoon mum will pick me up late morning and we'll do our ABR in the afternoon. I can't wait! BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Cerebral palsy - Paralysie cérébrale

Paralysie cérébrale - cerebral palsy. Today is mine and Oatie's day off from ABR. It's a bank holiday weekend. Some of our very best friends which we haven't seen for a while (since we started ABR) came over for coffee this morning. It's funny we didn't know that they knew other families who have children with Cerebral Palsy. Oatie was on form showing off his walking and walking backwards (Oatie's) Michael Jackson moonwalk. The kids gave them their baking that they made for them yesterday. Steps forward and back with progress today he's walking from one thing or person to the next.

Sunday, September 5, 2010

Sunday's raining.

Today it's raining. My brother and sister just came back from skating so I'm busy asserting my rights (with an enthusiastic loud voice). Today I mixed the banana cake all by myself my brother weighed the ingredients for me. We're eating it tomorrow when mum and dad's friends come over for a cup of coffee. We did about 2:25 of ABR today. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Saturday, September 4, 2010

Fame ! I want to dance forever

Today I got a bit upset, we went shopping for some dance shoes for my brother and sister.  I was OK for a bit, but then got very upset.  My mum said it was the same as when I go to the skate shop. My mum explained to the fitter that I (Oatie) want to dance, and the I said "mummy tap shoes please" and the assistant almost cried.  Mum said when I'm a stronger walker I can go to dance class.  One day I will dance on my feet. I currently dance in my frog-hop spin.  When we got home mum had a surprise for me (she kept all my siblings dance shoes) and I have my very own pair of tap shoes. I watched Shrek 1 & 2 while having my ABR today we did 3 hours. I thought Shrek was funny. Today I did a yoga crab for a second or so.  I couldn't do that before.

Back on track

Today mum and I did just over 3 hours of ABR, we had a special bench prop; my brothers cat! We had a frantic afternoon. Our clubs figure skating season started today, so my brother and sister were very excited. I enjoyed watching them skate. I Really wanted to swim today but we couldn't as the pool closed for maintenance. Some days I walk better than others, like a few steps forward and a few back. Today I was a bit wobbly. Mum thinks I move more fluid after we went swimming. BlogBooster-The most productive way for mobile blogging. BlogBooster is a multi-service blog editor for iPhone, Android, WebOs and your desktop

Thursday, September 2, 2010

Shoes, School and Laces...

Shoes, School and laces; well you know Oatie had trouble getting glasses well it's week for it. Do you think you could get 1 pair of size 12 runners (trainers) velcro fastening for a girl? In 11 different shops over the past few weeks? Nope of course not! So today we've only got one hour in so far. I had to persuade Oatie's sister to buy some lace-ups for her indoor and outdoor shoes this afternoon in our twelfth shop. Which has got me thinking of Oatie, he likes his independence like his big sister (who can tie laces since she was 4) what will we do for him when his feet are that size? Velcro would be ideal for him, I don't know if he'll ever be able to tie laces. I'm hoping to squeeze some more ABR in after the other two have gone to bed.

Wednesday, September 1, 2010

Record Breaking Bench ABR - Yeah!

Today my brother and sister both had their first day back at School.  So after the school run, mum and I settled down to bench.  I watched my current favourite Thumbelina and of course the Tigger movie.  We did 3hours50 minutes today.  We had a brilliant bench session.  When my brother and sister came home, we played together and ate mum's homemade lasagna, read some books together and now I'm snuggled up in bed.  One week till I start school and hopefully I'll get my new glasses soon!
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