The Preschool Plague

Being handicapped adds a new dimension to the preschool plague, maybe as my hands are on the floor lots or maybe just bad luck. I've been ill since just after Halloween with 3 back to back illnesses, shook off the first, shook off croup and now I have something else. My mum and dad have kept me home when I was really ill on the ill ill days where as the fad seems to be take ill kids to school with fevers, who by bad luck cough or sneeze right in my face and voila my next illness... I missed school again today, so I might be taking a whirl to urgent care just to be on the safe side.

One more day of reduced bench hours

Today, we did  35 minutes of Manual ABR, one more day of reduced hours...  Today we played "What's that" lots, and Oatie turned it around so he would want to be teaching me the names of things, it was very cute... he also does an Eddie Murphy-ism, when he says something funny and ends it with a Yes, and it's hilarious.  Oatie's standing was super again today and his core seems to be so much stronger.  Oaties dad noticed that the leg with the cramp is lessening and, when asked to flex his foot it went straight up rather that the hesitation.

Today I copied the sign gestures from the TV

Today we didn't get to do bench as I was really tired and we were going to a choral concert at my brothers school.

This evening I stood in front of the TV next to my brother and stood unaided and... Copied the sign gestures while singing/speaking the words. Mum thought it was amazing.

Me at the concert

My first day back at school

Yesterday, I stood up in open space un-aided, I haven't done that since the Summer.  I wanted to go and stroke Crystal my brothers cat.  Mum said I stood up so much easier and... I didn't wobble, while I took steps towards Crystal I was chatting away.... something I don't usually do as I used to have to concentrate on every single step and my balance and yesterday it was like I didn't have to think about walking or taking steps, I just DID.

Well.... today was my first day back at preschool.... and my teacher shouted at my mum, regard..... regard... regard, so my mum peeked around the door and saw me with my lunch kit in my hand... chatting away walking unaided out of the classroom door.

I haven't improved my distance, but my core stability, and I am so much more sturdier and I could chat, hold a weighed bag and walk.... A very close supportive family friend whom I call my uncle, who saw me walk out of the class, was so happy and proud he gave me a huge kiss on my head and told me he was so proud, which made my day!

3 more days of school skating and I get my manual ABR back.... I've been bereft without it... at least I get my buzz bench (Machine ABR), but tomorrow I should get a few hours of manual in.

The weekend

Here I am, super cheerer! For my brother and sister competing this weekend. .. My brother skating...

I can chat, while doing head gesture and take some steps

Today mum was amazed I havent stood up without a prop since the Summer! Today I stood up in open space and walked across the living room, while chatting non stop I was walking with a more normal gait and it turned on the spot and looked around while doing so! Mum was sad as she only got 30 mins of manual today, as my big bro has school skating in town this week. Here is a photo from this weekends skating comp, I love watching the competitions, I shout out my brother and sisters names to cheer them on.

I'm better...

I am so much better today. I'm laughing and giggling again, so mum is so happy to have her comic relief back...

I'm laughing the jokes from Dora.

We did over 12 hours of machine and mums done half way on my bench...

Is it almost Friday already....

Well.... I've been off school most of the week, my mum after having the flu, then got a form of my croup virus... as she has now totally lost her voice... my mum LOVES to talk.... so she says that she gets to experience a fraction of my frustration when this happens to her... as she feels so pent up not being able to articulate....but having lots that she wants to say....

We have been doing around 12 hours of Bench a night... and.... mum even thought my brother has school skating (It's just for 2 weeks) been able to get 2-3 hours of ABR in each day... Dad has helped by taking my brother/sister skating or helping mum organise things for the next day...

Today I got 3 hours in.... hooray!!!