Cerebral Palsy Christmas party

We had a brilliant time at our local cerebral palsy Christmas party, it was a really great time.

It was held at a dinner theatre, and it has the most wheelchair accessible venue I've EVER seen, a wheelchair could go at any table or seat... it was lots of ramps all over like a maze it was brilliant.

Santa was there and there was a candy bar... and a crafts table and it was a great party which everyone had lots of fun.

This week is a busy week with skating test days, and baby appointments and piano tuning appointments and parents night at school.... lol!

Aide we go again....

Well since September, we have had a few aides for Oatie. The first and 4th on was really nice, but her mother was ill and has now retired from the school year on compassionate leave, poor lady... feel for her with that.

The next was a guy, he was super happy but had a different idea of safety compared to me, like he'd put Oatie on slides etc... and that would be fine, but this was like a 16ft slide and metal and Oatie doesn't have the core stability like other kids his age not to fall back and smack his head.... he also gave Oatie a toilet phobia...

Then we have the temp fill-in from the school, who is the BEST so far, she has filled in on and off since September and Oatie comes back happiest he has a good time (safe) in the playground... and he goes to the washroom on the toilet not the potty with her and she is always smiling, even when she tells kids off apparently...

So Aide we go again... the worrying part is that they put the advert for Oatie's new aide out to parents, which might get another NAFF experience like we had when he was in preschool with a person who just wants some money,... rather than a person who has chosen a career path helping people with challenges which is a totally different thing for me...

The bad experience he had in preschool was a parent... all the nice aides he's had are all along the path of special needs of some sorts...

Oatie can from standing fully squat and then stand up again! like seriously!

yes, yes yes... you read it right.... Oatie can go from standing and fully squat and then stand up again and then go back to a full squat and stand up again.

He can now walk around the house much more and spends very little time crawling around... he's such a beautiful kid!

Oatie's new Wheelchair!

Here is Oatie's New Wheelchair, he was going to use it just for going on the school bus... but he likes steering it and having independence.... so I'm tempted to take it out shopping with us, so he can then go where he wants to go, (like his walker) but this way it won't damage his legs like he walker will.

We still want to follow the ABR route as much as possible and so I always pack the walker, so Oatie can see it and knows there is a "choice" but then for distance he's usually pushed in his stroller.

Wheelchair "driving" test... my older two make a variety of mini exercises for Oatie to practice this is just two of them. These are for 360o's so he can practice pushing and pulling.

There is a go down an incline and then stop... and a steering test too. All the kids had great fun :)

How heavy is the wheelchair?

Seriously! How heavy is the wheelchair. Oatie has the most basic one that you can get... it's the only one that or healthcare system would contribute to... and it so heavy!

It's wheels and a basic frame... there isn't really a seat it's a hammock... and nothing to the back rest... the wheels do come off but that's not the heavy part... I'm no wall flower either... and even Oatie's temporary aide who was a man said it was heavy.....

I lifted it once during pregnancy with my eldest and I wished I never had... it wrenched all my ligaments under my bump and i hurt for an entire week... so my husband has kindly (I am happy about this) forbid me to lift it until I have recovered from kitkat...

I have looked online and there are aluminium rails that you can unfold and wheel it up that way, my husband said that the amount of force to push it up that is worse than lifting it...

You would think in this day and age that they would make them lighter... I understand that they don't want them tipping back or forwards... but his wheel chair has the stabiliser wheels at the back... anyway as without it tips back.

I should be grateful as at least it's cost share with the government... and I should be grateful that they LET him have a new one... but it still weighs a tonne!

AND it is rubbish in the snow! does anyone have any good tips for wheelchairs in the snow? it's snowy here for 6 months of the year....

I'm a special needs momma and....Blogger and Apple I wish you'd sort it out lol! I'm not interested in your techno wars....

I don't know about you, but every minute in the day is special to me... either awake or asleep!

Well i lined up lots of blog posts, which was automatic, it said it was scheduled but well whatever, you guessed... they didn't end up automatic and If I post them now they will be all BACKDATED for the past few weeks! I just wish that Apple/google would sort it out.... I don't know about you, but I don't really give a dime about their techno war.... I just want the technology that is out there that is compatible (by force) to just WORK in harmony... and stop this competitive rubbish of whose tablet can sing and dance!

Well you can look forward to the store of blog posts that I wrote in the days before "KitKat's birth".

Yes my little kitkat is here! very excited and she was born at home, and the midwife came with 30 minutes to spare... only because I thought she would be called out to someone elses birth and we live 45 minutes from hospital that I knew we'd never reach.... And yes to egg the labour on I was out at a rink just 3 hours before I gave birth watching my eldest 2 ice skate... it was on doctors orders... as he said at our last scan which was 12 hours before ktikat made her entrance... that do something stupid. financial loss or insane to get her out... so that's what I did, I went to 2 ice rinks with contractions!

Saying that, she LOVES the rink... and she is also going through the night... reason for stacking up my blog posts was that!!!! she basically feeds throughout the evening and then sleeps from 1am to 9am! each night since she was 2 weeks old....

I don't know how long that will last... but I am enjoying it while it does! as you know it could all change just like that....

Oatie is a super big brother as we knew he would be...

He has still been clean and dry for months now! the only problem is that he has a toilet phobia at school induced by his AIDE!!! yep THANKS FOR THAT - hope you detected the sarcasm!