Super Oatie-Lightyear

Oatie loves this costume and has wanted to wear it for years... my eldest wore it when he was 3.

happy birthday Oatie

Today Oatie turned 5! We had a hospital appointment, then It took the kids to Starbucks for a treat and then we went on to my elder two's skate camp. Which is bliss for Oatie and I, We get to sit and relax together in a gorgeous air-conditioned building... to get away from the 30oC temperatures... and my elder two get to let off some steam for an hour. The camp is only 1-2 hours long, not all day like our previous skate club... so that's a nice amount of time...

I made the cake and, I thought that the "bomb" was his favourite, so I made chocolate cake... and then a day before he was telling me how he loves the Red bird.

The Day before we went to the British Fish and Chips for a special treat, Oatie had been looking forward to going there for a few months for his special birthday meal.

We watched his favourite movie and his kitten gave him Angry Birds T'shirts to him and his siblings so they were all matching, It's the first time mine have ever worn matching outfits lol!

It was a great day and he loved his presents... especially his "Binoo" his new kitten...

Binoo is so lovely and loves hugs

Binoo is a human-dog-cat... He loves human food so you can't leave a scrap out...he pounces, and sniffs like a dog lol!

Binoo and Oatie love watching curious george together

Oh Mannnn! not again!

I haven't had a puncture in like 16 years... but I got 2 in 2 weeks! Really got on my wick !

AT least Oatie loves the tire/tyre shop.

We've had a hot Summer so far which is nice... especially after our brisk winters....

The puck imbecile...

Today we met another "Daft Puck" imbecile... No it's not a typo... lol! We were walking past the glass and there was this man on the ice and he was deliberately hitting the pucks as hard as he could on the glass right when we were walking past and the most Oatie got upset the more he did it.

Well, I like to believe in Karma... what goes around comes around... and in this situation... It made me jump out of my skin.

Anyway when we were leaving the complex I asked the operation director why do they have to hit it on the glass where people walk by why not the other side by the WALL... and he was a twat too, saying he can do whatever he likes as long as he's on the ice. My favourite part is this guys office is right by the "daft puck" ice surface and while I was complaining... the Daft Puck, man hit a cracker that made him the idiot I was speaking to in the office jump out of his skin.

Karma, Karma...

Apart from another puncture yesterday... things are going pretty good...

We're almost at our target of saving for his bi-ski.... so just need to put our grant applications in the post in September :)

just having a huge SCREAM!!! arrrghghgghghghghghhggh if only I could scream!

Well majorly annoyed! In Canada, the government give the money to help special needs families to a "seniors" section AGENCY!, for for a start the website is geared to seniors only!!! so that throws you off the scent.

When you do finally get to the organisation and get a home care worker out... which is 2.5 years AFTER the official diagnosis... you still get nothing no help nothing!

Why! Well because of Oatie is out of the medical system so to speak, that I won't let them cut him up and do physiotherapy on him (because for him it won't do any good)... although I could do with some ROL (Roar of laughter!) we don't get any help for respite at all!

I have said it before, our "home" suffers, as I don't have time to run around with a vacuum cleaner. I really would love someone to sit and read with Oatie or reinforce his numbers as we all think as does his wonderful preschool aide who we're still friends with think he's is capable of university one day, it just getting him there or giving him the opportunity to get there if the wants to...

Our bottom line goal is to get him as independent as possible, so he can have the best quality of life that he can have and I think he could have an amazing life... i truly do... it's about not cutting off opportunity for him. He has declared he wants to do a tandem parachute jump one day... and also wants to learn to surf.

Well for the incontinence supplies... we were seen by the case worker in end of Jan and by April I found out it was authorised but no one bothered to even tell us! that's how rubbish it is... and you don't even get 100% you still have to pay a huge chunk, it's like a discount which is almost negligible as you can't use Walmart or Superstore.. you have to go to SAFEWAY which is more expensive to start with... so I don't even know if it's going to be viable...

Does it support SWIMMING! NOPE! well that's considered a luxury!

I think that for any disabled person out there should get hydrotherapy or access to a pool for FREE and the paraphernalia to go with it... swim nappies/diapers, buoyancy aides, and hopefully volunteers who are prepared to go in the water with them if the parent isn't able to.

How on earth do people who can't walk, get regular CV exercise! I bet it's next to none! It's not fair and it just isn't right and I really can't stand the system it STINKS!

Oatie is lucky that we do have a membership to our local leisure centre and I was a certified ASA Swimming instructor. What about the other Oaties who don't have that access or ability?

I might think about making a swim diaper for him as he's never has soiled himself not even in the bath... not ever.. and do that so I can them re-make one as he grows...

The whole thing if you excuse the pun, STINKS! it so does!

Oh and out of all the toilet seats that this government agency will sanction for him which is worth $50... there is the choice of just 1, which probably won't be suitable and will need my husband to modify it for Oatie!

Don't forget the means tested disable access ramp too. Yep if you earn more than less than minimum wage, you get means tested for a flipping ramp! and no I'm not joking!!!

Stinks, stinks stinks!